Website Links
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Medical Links to other useful websites, organisations, professional bodies related to pain, disability, and long term medical conditions.
Medical Associations and Societies |
Acupuncture - British Medical Acupuncture Society
 www.medical-acupuncture.co.uk  12 Marbury House, Higher Wickley, Warrington, Cheshire WA4 4QD  01925 730727
Alkaptonuria - Alkaptonuria Society
www.alkaptonuria.info The Alkaptonuria Society, 12 High Beeches, Childwall, Liverpool L16 3GA 0151 737 1862  manager@alkaptonuria.info
Anaesthesia - Association of Anaesthetists of Great Britain and Ireland
www.aagbi.org 21 Portland Place London W1B 1PY 020 7631 1650  020 7631 4352 info@aagbi.org
Anaesthesia - Royal College of Anaesthetists
www.rcoa.ac.uk 48-49 Russell Square, London, WC1B 4JY 020 7908 7300 info@rcoa.ac.uk
Anxiety - No Panic Helpline
www.nopanic.org.uk 93 Brands Farm Way, Randlay, Telford, Shropshire TF3 2JQ 0808 808 0545 (freephone helpline) or 01952 590545 ceo@nopanic.org.uk
Arachnoiditis - Arachnoiditis Trust
www.arachnoiditistrust.org PO Box 101, Ripon, North Yorkshire, HG4 2XW Helpline 0113 2880121 Head Office 01765 605668 information@arachnoiditistrust.org
Arthritis - The Arthritic Association
www.arthriticassociation.org.uk The Arthritic Association, One Upperton Gardens, Eastbourne, East Sussex, BN21 2AA 01323 416 550
Arthritis - Arthritis Research Campaign
www.arc.org.uk Copeman House, St. Mary's Court, St. Mary's Gate, Chesterfield, Derbyshire S41 7TD
Arthritis - Arthritis Care
www.arthritiscare.org.uk 18 Stephenson Way, London NW1 2HD 0808 800 4050 (Mon-Fri 12-4pm) info@arthritiscare.org.uk  Offers self-management courses
Back Pain - Backcare
www.backcare.org.uk 16 Elmtree Road, Teddington, Middlesex TW11 8ST 020 8977 5474
Back Pain - Backcare Think-Back
www.think-back.com 07811 222 044 thinkback@btinternet.com Offers self-management courses
Back Pain - Spinal Injuries Association
www.spinal.co.uk 76 St. James Lane, London N10 3DF 020 84442121
Back Pain - Brain and Spine Foundation
www.brainandspine.org.uk 7 Winchester House, Cranmer Road, Kennington Park, London SW9 6EJ 020 7793 5900 Helpline 0808 808 1000
Back Pain - Back Pain and Sciatica
www.help4urback.com Personal experiences of back pain and sciatica from Bill Morrison
A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z 
Cancer - Breast Cancer Care
www.breastcancercare.org.uk Kiln House, 210 New Kings Road, London SW6 4NZ 0808 8006000 (Mon-Fri 12-5pm, Sat 12-2pm)
Cancer - Cancer Bacup
www.cancerbacup.org.uk 3 Bath Place, Rivington Street, London EC2A 3JR 0808 800 1234
Cancer - Cancer Care Society
www.cancercaresociety.org 11 The Cornmarket, Romsey, Hampshire, SO51 8GB 02380 672200 info@cancercaresociety.org
Cancer - Cancer Aid Listening Line
0161 205 7780 (7.30-10.30pm)
Cancer - Cancer Link Helpline
0808 8080 000
Cancer - Leukaemia Care Society
www.leukaemiacare.org.uk 2 Shrubbery Avenue, Worcester WR1 1QH 01905 330 003
Cancer - Lymphoma Society
www.lymphoma.org.uk PO Box 386, Aylesbury HP20 2GA 0808 808 5555 (Mon-Fri 9-5)
Cancer - Brain Tumour Foundation
PO Box 6445, Thulston, Derby, DE72 3YR 020 8336 2020 020 8336 2020
Cancer - Macmillan Cancer Relief
www.macmillan.org.uk 89 Albert Embankment, London SE1 7UQ 020 7840 7840
Chiropractic - British Chiropractic Association
www.chiropractic-uk.co.uk Blagrave House, Blagrave Street, Reading RG1 1QB 0118 950 5950
Chiropractic - General Chiropractic Council
www.gcc-uk.org 344-354 Gray's Inn Road, London WC1X 8BP 0845 601 1796
Coccyx - Coccyx.org
www.coccyx.org jon@coccyx.org
Counselling - British Association for Counselling
www.bac.co.uk 1 Regent Place, Rugby, Warwickshire CV21 2PJ 01788 550 899
CMC Imaging - MRI Scans
www.cmcimaging.co.uk waiting.list@virgin.net 07967 195637
Crohn's Disease - Children with Crohn's and Colitis
Parkgate House, 356 West Barnes Lane, Motspur Park, Surrey KT3 6NB 020 8949 6209
Crohn's Disease - National Association for Colitis and Crohn's Disease
www.nacc.org.uk 4 Beaumont House, Sutton Road, St. Albans AL1 5HH 01727 844 296
Depression - Depression Alliance
www.depressionalliance.org 35 Westminster Bridge Road, London SE1 7JB 020 7633 0557
Disability - Limbless Association
www.limbless-association.org Rehabilitation Centre, Roehampton Lane, London SW15 5PR 020 8788 1777
Disability - Radar (Royal Association for Disability and Rehabilitation)
www.radar.org.uk 12 City For um, 250 City Road, London EC1V 8AF 020 7250 3222 radar@radar.org.uk
Disability - Ramp Project (Raising Awareness through Mentoring and Personal Support)
www.cdp.org.uk/ramp_cov.htm Coventry & Warwickshire RAMP, Council of Disabled People, Room 4, Koco Building, The Arches, Spon End, Coventry CV1 3JQ 024 76 712031, Textphone 024 76 712984 024 76 715260 maddie@cdp.org.uk RAMP is a project which has been set up to support Disabled People to find
employment, training or education. RAMP can also match Disabled People with a
Mentor who can assist you by providing additional support and advice.
www.dialuk.org.uk Andy Short, St. Catherine's, Tickhill Road, Doncaster, DN4 8QN 01302 310 123
 www.b-eat.co.uk  103 Prince of Wales Road, Norwich NR1 1DW  Helpline 0845 634 1414  helpmail@b-eat.co.uk Youthline 0845 634 7650 talkback@b-eat.co.uk Admin 0870 770 3256  01603664915 info@b-eat.co.uk
Endometriosis - The National Endometriosis Society
www.endo.org.uk 50 Westminster Palace Gardens, Artillery Row, London SW1P 1RL 0808 808 2227
Fibromyalgia - Fibromyalgia Association
www.fibromyalgia-associationuk.org PO Box 26, Stourbridge, West Midlands DY9 8YL Helpline 0870 220 1232 Open 10 am - 4 pm weekdays fmauk@hotmail.com
Fibromyalgia - Fibromyalgia Support Northern Ireland
www.fmsni.org.uk 4 Springwell Drive, Groomsport, Northern Ireland, BT19 6JX, UK 08709 909220 info@fmsni.org.uk
General - Patient's Association
www.patients-association.com PO Box 935, Harrow, Middlesex HA1 3YJ 0845 608 4455 (Mon-Fri 10am-4pm)
General - Expert Patients
www.expertpatients.nhs.uk Moving from patient to person - If you live with a long-term illness, why not take control by becoming an Expert Patient. The Expert Patients Programme is a self-management course giving people the confidence, skills and knowledge to manage their condition better and be more in control of their lives.
General - LMCA (Long-term Medical Conditions Alliance)
www.lmca.org.uk Unit 212, 16 Baldwins Gardens, London EC1N 7RJ 0207 813 3637 0207 813 3640 info@lmca.org.uk
General - Contact A Family
www.cafamily.org.uk 209-211 City Road, London EC1V 1JN 020 7608 8700
General Practitioners - Royal College of General Practitioners
www.rcgp.org.uk The Royal College of General Practitioners, 14 Princes Gate, Hyde Park, London SW7 1PU 020 7581 3232 020 7225 3047 info@rcgp.org.uk
Health - World Health Organisation
www.who.int/en/
Health - Department of Health
www.doh.gov.uk
Health - National Electronic Library for Health
www.nelh.nhs.uk/
www.medinfo.co.uk Providing information on a wide range of medical conditions.
Herpes - Genital Herpes Resource
www.genitalherpesresource.com
Hospice - Hospice Information Service
www.hospiceinformation.info St. Christopher's, 51-59 Lawrie Park Road, London SE26 6DZ 0870 903 3903
Hyalgan - Hyalgan.com
www.hyalgan.com
Hypermobility - Hypermobility Syndrome Association
www.hypermobility.org 12 Greenacres, Hadleigh, Benfleet, Essex, SS7 2JB 0845 3454465 HMSA
www.medinfo.co.uk Providing information on a wide range of medical conditions.
Intestinal Disorders - British Colostomy Association
www.bcass.org.uk 15 Station Road, Reading, Berkshire RG1 1LG 0800 328 4257
Intestinal Disorders - IBS Network
www.ibsnetwork.org.uk IBS Network, Unit 5, 53 Mowbray Street, Sheffield S3 8EN 0114 272 32 53 info@ibsnetwork.org.uk
Intrathecal Morphine Pump - Medtronic Inc.
www.medtronic.com Medtronic UK Ltd, Suite One, Sherbourne House, Croxley Business Centre, Watford, WD1 8YE 01923 221213
Intrathecal Morphine Pump - Pumpsters
health.groups.yahoo.com/group/pumpsters/ pumpsters1@earthlink.net A support group for those with implanted intrathecal pump systems
Kidney - British Kidney Patient Association
ME (Myalgic Encephalitis) - Action for ME
www.afme.org.uk PO Box 1302, Wells, Somerset, BA5 1YE 01749 670799
Medical - British Medical Association
www.bma.org.uk British Medical Association, BMA House, Tavistock Square, London WC1H 9JP 020 7387 4499 020 7383 6400 info.web@bma.org.uk
Medical - Hospital Consultants and Specialists Association
www.hcsa.com HCSA,1 Kingsclere Road, Overton, Basingstoke, Hants RG25 3JA 01256 771777
Medical - Medical Research Council
www.mrc.ac.uk Medical Research Council, 20 Park Crescent, London W1B 1AL UK 020 7636 5422 020 7436 6179
Medical - Association for the Study of Medical Education
www.asme.org.uk 12 Queen Street, Edinburgh EH2 1JE Telephone: 0131 225 9111 0131 225 9444 info@asme.org.uk
Medtronic Inc. - Medtronic Inc.
www.medtronic.com Medtronic UK Ltd, Suite One, Sherbourne House, Croxley Business Centre, Watford, WD1 8YE 01923 221213
Migraine - Migraine Action Association
www.migraine.org.uk 178a High Road, West Byfleet, Surrey KT14 7ED 01932 352 468
Migraine - Migraine Trust
www.migrainetrust.org 45 Great Ormond St, London WC1N 3HZ 020 7831 4818
Motor Neurone Disease - Motor Neurone Disease Association
www.mndassociation.org PO Box 246, Northampton NN1 2PR 01604 250 505 enquiries@mndassociation.org
www.cmcimaging.co.uk 07967 195637 waiting.list@virgin.net
MS (Multiple Sclerosis) - Action MS
www.actionms.co.uk Actionville, Knockbracken Healthcare Park, Saintfield Road, Belfast BT8 8BH 028 9079 0707
MS (Multiple Sclerosis) - MS Society of Great Britain and Northern Ireland
www.mssociety.org.uk MS National Centre, 372 Edgeware Road, London NW2 6ND 0808 800 8000 (Mon-Fri 9-9pm)
Musculoskeletal Medicine - British Institute of Musculoskeletal Medicine
www.bimm.org.uk 34 The Avenue, Watford, Herts. WD17 4AH 01923 220999 01923 249037 info@bimm.org.uk
Musculoskeletal Medicine - Society of the Apothecaries
www.apothecaries.org.uk Society of Apothecaries, Apothecaries' Hall, Black Friars Lane, London EC4V 6EJ 020 7236 1189 clerk@apothecaries.org
Nursing - Emergency Nurse.org
www.emergency-nurse.org The home of emergency nursing on the internet
Nutrition - British Nutrition Foundation
www.nutrition.org.uk High Holborn House, 52 - 54 High Holborn, London WC1V 6RQ 020 7404 6504 020 7404 6747 postbox@nutrition.org.uk
Osteopathic Supplies - Osteopathic Supplies Ltd
www.o-s-l.com Osteopathic Supplies Ltd, 70 Belmont Road, Hereford HR2 7JW 01432 263939 01432 344055 sales@o-s-l.com
Osteopathy - British School of Osteopathy
www.bso.ac.uk 275 High Street, Borough, London SE1 1JE 020 7930 9254
Osteopathy - General Osteopathic Council
www.osteopathy.org.uk Osteopathy House, 176 Tower Bridge Road, London SE1 3LU 020 7357 6655
Osteopathy - London College of Osteopathic Medicine
8 - 10 Boston Place, Marylebone, London NW1 6QH 020 7262 5250
Osteoporosis - National Osteoporosis Society
www.nos.org.uk Manor Farm, Skinners Hill, Camerton, Bath BA2 0PJ 01761 471 771
c/o Bronllys Pain Management Centre, Bronllys Hospital, Bronllys, Brecon, Powys LD3 0LU 01874 711 661
Pain - Pain Coalition
www.paincoalition.org.uk Ground Floor,
Irwin House,
118 Southwark Street,
London SE1 0SN 020 7202 8582 info@paincoalition.org.uk
Pain - Painline
PO Box 5333, Leicester LE7 2ZO 0116 269 5568 (Mon-Fri 11am-4pm)
Pain - Pain Concern
www.painconcern.org.uk PO Box 13256, Haddington, Edinburgh EH41 4YD 01620 822 572 (Mon-Fri 9-5pm, Fri 6.30-7.30pm)
Pain - Pain Support
www.painsupport.co.uk jansadler@painsupport.co.uk Organiser: Jan Sadler
Pain - Pain Talk
www.pain-talk.co.uk 0709 206 5403 info@pain-talk.co.uk
Pain - The Pain Relief Foundation
www.painrelieffoundation.org.uk Clinical Sciences Centre, University Hospital Aintree, Lower Lane, Liverpool L9 7AL 0151 529 5820 For information pack please send a SAE with 50p post and include £1 to cover costs
Pain - Pain Association of Scotland
www.painassociation.com Head Office, Crammond House, Crammond Glebe Road, Edinburgh EH4 6NS 0800 783 6059
Pain - International Association for the Study of Pain
www.iasp-pain.org IASP Secretariat, 909 NE 43rd St., Suite 306, Seattle, WA 98105-6020 USA 00-1-206-547-6409 00-1-206-547-1703
Pain - The British Pain Society
www.britishpainsociety.org The Secretariat, 21 Portland Place, London W1B 1PY 020 7631 8870 info@britishpainsociety.org
Pain - DIPEx
www.dipex.org/chronicpain
Pain - The Pain Web
www.thepainweb.com A website for health professionals
Pain - Pain.com
www.pain.com A world of information on pain
Pain - EFIC (European Federation of IASP Chapters)
www.efic.org
Parkinson's Disease - Parkinson's Disease Society
www.parkinsons.org.uk 215 Vauxhall Bridge Road, London SW1V 1EJ 020 7931 8080
Physiotherapy - The Chartered Society of Physiotherapy
www.csp.org.uk 14 Bedford Row, London WC1R 4ED 020 7306 6666
Physiotherapy - Physiotherapy Pain Association
www.ppaonline.co.uk Barbara Stead Secretary, Barnet and Chase Farm Hospital NHS Trust, Barnet General Hospital, Wellhouse Lane, Barnet, Herts. EN5 3DJ
Physiotherapy - The Physiotherapy Site
www.thephysiotherapysite.co.uk The Physiotherapy Site, 6A Marlborough Road, Exeter EX2 4TJ 01392 410895 Jonathan
Pilates - Pilates Foundation UK Limited
www.pilatesfoundation.com The Pilates Foundation® UK Limited, P.O. BOX 36052, London, SW16 1XQ 07071 781 859 020 8696 0088 www.pilatesfoundation.com
Polio - The British Polio Fellowship
www.britishpolio.org Eagle Office Centre, The Runway, South Ruislip, Middlesex HA4 6SE 0800 018 0586
Psychology - British Association for Behavioural and Cognitive Psychotherapies
www.babcp.org.uk PO Box 9, Accrington, Lancashire BB5 2GD 01254 875 277
Psychology - BPS (The British Psychological Society)
www.bps.org.uk St. Andrews House, 48 Princess Road East, Leicester LE1 7DR 0116 254 9568
Psychology - Westminster Pastoral Foundation
www.wpf.org.uk Ms L Leszczynski, Personnel & Administration, WPF Counselling, 23 Kensington Square, London W8 5HN 020 7361 4800 lykke@wpf.demon.co.uk
Prolotherapy - Prolotherapy Practitioners
www.bimm.org.uk A list of prolotherapy practitioners who are members of the British Institute of Musculoskeletal Medicine
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RSD (Reflex Sympathetic Dystrophy) - RSD Syndrome Support Group
RSI (Repetitive Strain Injury) - RSI Association
RSI Association 380-384 Harrow Road, London W9 2HU 0800 018 5012 (Mon 11.30-5pm, Wed + Fri 11.30-4pm)
Shingles - Shingles Support Society
www.herpes.org.uk 41 North Road, London N7 9DP 020 7609 9061 Please send a SAE with a small donation to cover the printing costs of the information pack
Sickle Cell - Sickle Cell Society
www.sicklecellsociety.org 54 Station Road, London NW10 4UA 020 8961 7795 / 020 8961 4006
Sleep - The Sleep Council
www.sleepcouncil.com
Sleep - The Pure Sleep Company
www.thepuresleep.com
Sleep - Sleep Deprivation
www.sleep-deprivation.com
Sleep - Neuronic
www.neuronic.com
Sleep - Loughborough University Sleep Research Centre
www.lboro.ac.uk
Smoking - The Stop Smoking Centre
www.thestopsmokingcentre.co.uk 52 Earlsdon Street, Earlsdon, Coventry, CV5 6EG 0800 074 7092 Contact us
Spinal Cord Stimulation - Medtronic Inc.
www.medtronic.com Medtronic UK Ltd, Suite One, Sherbourne House, Croxley Business Centre, Watford, WD1 8YE 01923 221213
Spirituality - Spirituality Web Directory
The-Insight.com
Sports - Scottish Sport
www.scottishsport.co.uk info@scottishsport.co.uk
Stroke - The Stroke Association
www.stroke.org.uk Mitchell House, 433 Chiswick High Street, London W4 4AU 020 8994 2847
Surgery - Royal College of Surgeons of England
www.rcseng.ac.uk RCSE, 35-43 Lincoln's Inn Fields, London WC2A 3PE 020 7405 3474
Synvisc - Wyeth.com
www.wyeth.com
Tinnitus - British Tinnitus Association
www.tinnitus.org.uk 4th Floor, White Building, Fitz Alan Square, Sheffield, S1 2AZ 0800 018 0527
Tinnitus - RNID (Royal National Institute for the Deaf)
www.rnid.org.uk RNID, 19-23 Featherstone Street, London EC1Y 8SL 0345 090 210 (Mon-Fri 10-3pm) informationline@rnid.org.uk
Trigeminal Neuralgia - Trigeminal Neuralgia Self-Help Group
home page (long link) 27 St. Kenya Avenue, Hove, BN3 4NP 01273 410 565
Trigeminal Neuralgia - Trigeminal Neuralgia Association (USA)
www.tna-support.org
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Vulval Pain - The Vulval Pain Society
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